Saturday, December 12, 2015

Obstacles are those frightful things you see when you take your eyes off your goal.

     We've had a rough week.  Two absence seizures this week.  Monday and Thursday.  We knew it was coming and Dr. Robinson has tried to prepare me for this and yet I still lay here in tears! 

     Puberty can trigger seizures in kids and I think we are starting to see it in Braydon.  I know everyone does not understand so let me explain.  Braydon has generalized genetic epilepsy.  Which means his entire brain is affected not just one lobe.  He can have any type of seizure, although for him we've only ever noticed absence seizures and tonic clonic (grand mal) seizures.  His neurologist has told us that over the years he's probably had mild other types that have just been looked over.

     Absence seizures can Happen quick and easily go unnoticed.  They are when the person kind of drifts out of consciousness and stares off into space.  During this, usually brief time period he has no clue what is going on around him and when he comes out of it time is lost.  Whatever happened while he was out is done and he is confused.  After the seizure he feels extreme confusion, panic, headache, an upset stomach and becoming sleepy. 

     He is finally to the point now when he knows if he did or did not have a seizure.  He can recognize the signs afterwards and told me he is really getting good at feeling them coming on. 

     I'm super stressed that we are at the point that they will be more common.  His Dr is super pro active and after the first one on Monday increased his meds.  It's something we will get through and in the end will be fine.  It's just the road is a little bumpy. 

     God has our back and will continue to keep us strong.  Braydon will continue to grow up to be this crazy intelligent quirky rule follower. 

    I hope everyone has a seizure free holiday!!


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