Saturday, April 28, 2012

The grand essentials of happiness are: something to do, something to love, and something to hope for.

What a week!!!!  Never thought I would see Saturday!! I thought I would post a few pictures of two of the best people I know!!  Now that we are zoo members we are trying to take FULL advantage of it and we go as often as possible.  I highly recommend a zoo membership to everyone.  We are going to Zoovies in the park in a few weeks, they are having a large projector and playing the movie Rio and then A sleepover in the zoo a few weeks after that, all free to members!! SUPER excited!!

     This week was a rough week.  Braydon had TCAP testing this week and in the middle of the first day threw up all over the classroom.  I was called to go get him.  He had been complaining of a severe headache and felt like he was going to throw up but I pushed him to go thinking that was what was right, well I was wrong.  Called his neurologist and with his seizure activity the Dr. Fears he had a Tonic Clonic seizure early in the morning.  Which causes him to have a bad headache and nausea.

      There is no real way to know if he for sure had a seizure or not, but considering what happened last week the strong possibility is there.  So after spending a few days at home I have come to the conclusion I want to make a difference in epilepsy awareness.  I'm not sure how I'm going to do it, but I'm going to start right here on the Blog that some days keeps me from breaking down.  Seeing the words of encouragement from those we love!!

The grand essentials of happiness are: something to do, something to love, and something to hope for.

1.something to do-  Among being a mother, full time employee, wife, daughter, sister, and friend I will educate and advocate for epilepsy

2.something to love-  My husband, my children, my family, my friends, and those fighting our same battles.

3.something to hope for-  A cure..............

Here is a link to Braydons type of seizures for those that don't know much about it

Here is the link to the Epilepsy Foundation of America

To end on a high note.....The past two weeks has been the Little Country School House Trike a thon where we raise money for St. Jude research Hospital!!  It was yet another successful year and I am so excited and grateful to all the help and support!!!  It was an AMAZING two weeks and I'm glad we can get the support of our families to send such a large amount of Money to St. Jude every year!!

Saturday, April 21, 2012

Carpe Diem

Mental Breakdown to Car breakdowns and everything in between!!!  I will start with my mental breakdown, only because it has a few funny moments :)

     The past few weeks for me have been HORRIBLE.  I have cried everyday and been so emotional that I have lost my sense of me.  Emotional me is fine, crying me all the time is not.  I am a very easy person to read which for those that have to deal with me on a daily basis is a good thing, they know within 5 seconds of looking at me where I am mentally for the day.  The past few weeks I have "mentally" checked out!!!   So this past Monday I decide I need to see a doctor.  I'm convinced my stress and emotions have gotten the better of me and I am in need of something to balance me out.  So I go to the Dr.  I sit in his chair and I POUR my guts out to this poor man who can only hand me a tissue.   We are talking snot and tears he can barely understand me, I'm mumbling most of my words.  It was BAD.  So he looks at me and says "have you been sleeping through all of this going on in your life?"  and I really had no answer.  I felt like I had, I went to bed at a decent hour but maybe he was on to something and I had not been getting a restful sleep.  So he tells me he thinks it is nothing more than me needing some good sleep.  He gave me some Ambien and tells me to take it over the next week at least and develop a good sleeping habit and the man is a genius!!  I feel A MILLION times better!!

     Now to car breakdown!!  I have been without a car for a while now.  Autozone messed up my car and then the break line blew and I need a whole new break line.  I wish i could wave a magic wand and make all this ok...however it wont happen.  I have the best people in the world helping me get through my car situation and helping every way they know how!!  So it has been easier than your average persons car problems!!  Thanks to those of you who know who you are!!

      So onto Carpe Diem.......B will be attending summer camp this year.  YAY!!  We found him a summer camp for epileptic children in GA and after much debate decided it was best that he go.  He is SOOOOO excited and so am I.  I have been dying for him to meet more children just like him so he can understand he is not the only one.  Rope climbing courses, horse back riding, pools, boating, and many more activities and I cannot wait for him to go.  He will be going the last week in July, he is so super pumped and so am I.  Dad took some convincing because it is so far away, but after he saw pics he was ready to send him for some fun.  The poor kid needs some time with people that feel like him someone he can connect with about his feeling about epilepsy that we don't understand.  I'm ready for JULY!!!

      Now for the bummer news.  Braydon had two minor seizures yesterday morning before school.  He was asleep and did not even realize they had happened so that was good.  The Dr. has decided to up his seizure meds to 750mg twice a day and a B6 supplement to help with the mood swings.  We are having to fight our insurance company to cover most of these expenses and even though we have hit our yearly deductible they are still making us pay out of pocket.  Hopefully this will all be straightened out soon and will not be an issue any more!!!

   So in the spirit of epilepsy we intend to CARPE DIEM!!!   and we hope you do to!!!

Tuesday, April 10, 2012

Survived turning 30 and Easter all in the same day

The road to success is always under construction.   

I feel like this is the most true statement any one person can make!!  Even people I would consider VERY successful strive for more success.  Although I am very happy with my life and would not change it for the world, more success in the banking department never hurt anyone right??

Claudia turned 8 on Sunday and I turned 30.  I believe Claudia had a blast at her Karate party.  She seemed to enjoy every moment of it!!

It is very hard to believe how big she has gotten.  So full of excitement, life and things are always an adventure with her!!

Braydon seems to be doing amazing considering his current situation.  He is so excited to learn more about epilepsy and not afraid to talk to others about how it makes him feel and what happens when he has a seizure.  I'm very very proud of him. 

Shawn and I are hanging in there.  Everyday it seems like life is throwing us yet another curve ball but I guess that is our "road" to success.  I know things will get better and we just have to hold out for that moment.  As long as you smile along your bumpy road to success no one will ever know how uncomfortable you really are!!  :)