Sunday, June 30, 2013

Where there is no struggle, there is no strength

One week we were doing great and the next...not so much!!!  Braydon has had a lot of seizure/seizure related activity going on.  I'm trying to play it off like it does not bother me but in the end I'm worried!!  Is this the start of what the Dr's said could be YEARS of hormone related seizures!!  Or is there something going on??  I'm really starting to get concerned!!  I'm trying really hard to not sweat it, but it's just not working!!  So frustrating!!!  Been talking very closely with his neurologist and hopefully she can help!!  Going to get some sleep and hopefully not stress it and everything will be ok!!  B is in great spirits and seems to act like it all is in big deal!!  So I can too right???

Monday, June 3, 2013

Fall seven times, stand up eight.

For people with epilpesy they miss time.  They lose portions of their lives at any given point.  Luckily Braydon has only lost minutes, some have lost hours, maybe even days.  For whatever reason this saying spoke to me. 
To think all that Braydon has gone through in the past year has brought him to Camp Carpe Diem and that has brought him soooo much joy and happiness.
This is Braydons path in life, this has brought him to this point. 
Thank you to Childrens Healthcare of Atlanta, Epilepsy Foundation of Georgia, Camp Carpe Diem and Camp Twin Lakes!!  You are amazing!!
FYI- he had the time of his life yet again at camp!!