Sunday, March 16, 2014

It's not whether you get knocked down, it's whether you get up.

Well........... This week marks two years ago that Braydon had his seizure and that he was diagnosed.  He had a seizure yesterday. 
I was miles away and dad was with him.  There was nothing for me to do but I still went home.  This seizure has been a little different than the past ones, he was much more confused than normal coming out of it.  He is recovered and the cloudiness was gone with in an hour and he is now fine.  He forgot his medicine and I'm hoping that was all it was, but it could be he is out growing his dosage.  It could also be the hormone seizures that Dr. Robinson told us to be on the look out for. 
We were doing so great and of course this is a major set back.  We were looking at August 2015 for weaning from medicine and now it will be at least March 2016 if ever.  Dr Robinson reminded us last time any seizure activity this year (meaning in his 12-13 years) would determine whether or not we could ever attempt to take him off of his meds.  The later in his life that he continues to have them means it is not juvenile and will continue the rest of his life. 
We went about 7 months with nothing.  Well, what to do now.  Nothing.  I notified Dr. Robinson and will email his teachers to let them know the chance  of another of the next few days into the next week of two are high and hope and pray nothing happens while he is at school.  That's his biggest fear with all of this, having one at school and mom not being there to help.  So today we will pick our selves back up and keep an eye out on him and go on with our lives.  That's all you can do.  Thanks for the texts and calls from family and friends.  I appreciate more than you will all ever know!